Living with peripartum cardiomyopathy: A statement from the Heart Failure Association and the Association of Cardiovascular Nursing and Allied Professions of the European Society of Cardiology


Sliwa K. Rakisheva A. Viljoen C. Pfeffer T. Simpson M. Jackson A.M. Petrie M.C. van der Meer P. Al Farhan H. Jovanova S. Mbakwem A. Sinagra G. Van Craenenbroeck E. Hoevelmann J. Johnson M.R. Mindham R. Chioncel O. Kahl K.G. Rosano G. Tschöpe C. Mebazaa A. Seferovic P. Bauersachs J.
October 2024John Wiley and Sons Ltd

European Journal of Heart Failure
2024#26Issue 102143 - 2154 pp.

This statement focuses on the fact that women with peripartum cardiomyopathy (PPCM) have a substantial mortality and morbidity rate. Less than 50% of patients have full recovery of their cardiac function within 6 months of diagnosis. Also, patients with recovered cardiac function often suffer from comorbidities, such as hypertension or arrhythmias, which require long-term treatment. This has major implications which extend beyond the life of the patient, as it may also substantially impact her family. Women with a new diagnosis of PPCM should be involved in the decision-making processes regarding therapies, e.g. the recommendation to abstain from breastfeeding, or the use of cardiac implantable electronic devices. Women living with PPCM face the uncertainty of not knowing for some time whether their cardiac function will recover to allow them a near-to-normal life expectancy. This not only impacts their ability to work, which may have financial implications, but may also affect mental health and quality of life for the extended family. Women living with PPCM must be informed that a future pregnancy always carries a substantial risk and, in case of poor cardiac recovery, is associated with a high morbidity and mortality. Patients with PPCM are best managed by an interdisciplinary and multiprofessional approach including e.g. a cardiologist, a gynaecologist, nurses, a psychologist, and social workers. The scope of this document encompasses contemporary challenges and approaches for the management of women diagnosed with PPCM.

Multidisciplinary care , Patient awareness , Peripartum cardiomyopathy , Therapy

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Cape Heart Institute, Department of Cardiology and Medicine, University of Cape Town, Cape Town, South Africa
Scientific Institution of Cardiology and Internal Medicine Almaty, Almaty, Kazakhstan
Department of Cardiology and Angiology, Hannover Medical School, Hannover, Germany
Golden Jubilee National Hospital, Clydebank, United Kingdom
Department of Cardiology, Institute of Cardiovascular and Medical Sciences, Glasgow University, Glasgow, United Kingdom
Department of Cardiology, University Medical Center Groningen, Groningen, Netherlands
Iraqi Board for Medical Specialization, Scientific Council of Cardiology, College of Medicine, University of Baghdad, Baghdad Heart Centre, Iraq
Department of Cardiology, University Clinic of Cardiology, University Cyril and Methodius, Skopje, North Macedonia
Department of Medicine, College of Medicine, University of Lagos, Lagos, Nigeria
Cardiovascular Department, Azienda Sanitaria Universitaria Giuliano Isontina (ASUGI), University of Trieste, Trieste, Italy
Department of Cardiology, Antwerp University Hospital (UZA), Edegem, Belgium
Department of Internal Medicine III, Saarland University Hospital, Homburg (Saar), Germany
National Heart and Lung Institute, Imperial College London and Royal Brompton Hospital, London, United Kingdom
Cardiology Clinical Academic Group, St Georges Hospitals NHS Trust University of London, London, United Kingdom
Richard Midham, European Cardiac Society Patient Forum, Sophia Antipolis, France
Emergency Institute for Cardiovascular Diseases ‘C.C. Iliescu’, and University of Medicine ‘Carol Davila’, Bucharest, Romania
Department of Psychiatry, Social Psychiatry and Psychotherapy, Hannover Medical School, Hannover, Germany
Cardiovascular Clinical Academic Group, Molecular and Clinical Research Institute, St Georges University Hospital, UK and San Raffaele Cassino Hospital, Cassino, Italy
Department of Cardiology (CVK), Berlin-Brandenburg Center for Regenerative Therapies (BCRT), German Centre for Cardiovascular Research (DZHK) Partner Site Berlin, Charité University, Berlin, Germany
University Paris Cite, Department of Anaesthesiology and Critical Care Medicine, AP-HP, Saint Louis Lariboisière University Hospitals, University Paris Diderot, Paris, France
University of Belgrade Faculty of Medicine and Heart Failure Center, Belgrade University Medical Center, Belgrade, Serbia

Cape Heart Institute
Scientific Institution of Cardiology and Internal Medicine Almaty
Department of Cardiology and Angiology
Golden Jubilee National Hospital
Department of Cardiology
Department of Cardiology
Iraqi Board for Medical Specialization
Department of Cardiology
Department of Medicine
Cardiovascular Department
Department of Cardiology
Department of Internal Medicine III
National Heart and Lung Institute
Cardiology Clinical Academic Group
Richard Midham
Emergency Institute for Cardiovascular Diseases ‘C.C. Iliescu’
Department of Psychiatry
Cardiovascular Clinical Academic Group
Department of Cardiology (CVK)
University Paris Cite
University of Belgrade Faculty of Medicine and Heart Failure Center

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