Brain health and national neurological societies: Results of the European Academy of Neurology survey on brain health awareness and areas of implementation for European countries
Leonardi M. Colonna I. Garcia-Azorin D. Bereczki D. Bodini B. Bregman N. Kälviäinen R.K. Kondybayeva A. Papp V. Vodušek D.B. von Oertzen T. Danova R. Crean M. Wurm R. Bassetti C. Berger T. Boon P. Kallweit U. Marson A. Moro E. Rektorova I. Toscano A. Leocani L.
December 2024John Wiley and Sons Inc
European Journal of Neurology
2024#31Issue 12
Background and purpose: The European Academy of Neurology (EAN) has adhered to the global plan for reducing the burden of neurological disorders and promoting brain health launched by the World Health Organisation (WHO), the WHO Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders. This study reports the results of an EAN survey among national neurological societies (NNSs) on their awareness of brain health policies. Methods: The EAN survey on the current state of national brain health policies was conducted among the 47 presidents of the NNSs affiliated with the EAN, with the aim of developing the best strategy for close collaboration among stakeholders. Results: From June 2023 to February 2024, 36/47 responses (77%) were collected. Among respondents, 67% were in contact with their Ministry of Health and 78% were aware of and in contact with one or more national neurological patient organisation, while 17% had no contacts with any association. Ninety-two percent declared a high to medium degree of awareness of the need to support brain health and of brain health plans and strategies in their country. Conclusions: Our findings suggest good awareness of the importance of brain health and of the strategies implemented at the national level among the EAN-affiliated NNSs and representatives. Efforts towards improvement may be directed towards cooperation between NNSs and political institutions, as well as patient organisations, to optimise brain and global public health and neurological care in each country.
brain health , health policies , neurological societies , patients organization , prevention and care
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Neurology, Public Health, Disability Unit and Coma Research Centre, Fondazione IRCCS Istituto Neurologico C. Besta, Milan, Italy
Complex Operative Unit of Neurology, “F. Ferrari” Hospital, ASL, Lecce, Italy
Department of Neurology, Hospital Universitario Rio Hortega, Valladolid, Spain
Department of Neurology, Semmelweis University, Budapest, Hungary
Neurology Department, St. Antoine Hospital, APHP, Paris, France
Paris Brain Institute, ICM, CNRS, INSERM, Sorbonne Université, Paris, France
Cognitive Neurology Unit, Neurological Institute, Tel Aviv Sourasky Medical Center, Tel Aviv, Israel
Epilepsy Center, Neurocenter, School of Medicine, Institute of Clinical Medicine, Kuopio University Hospital and Faculty of Health Sciences, University of Eastern Finland, Kuopio, Finland
Scientific and Educational Center for Neurology and Applied Neuroscience, Asfendiyarov Kazakh National Medical University, Almaty, Kazakhstan
Odense University Hospital, Odense, Denmark
Division of Neurology, University Medical Centre, Ljubljana, Slovenia
Medical Directorate, University Hospital Würzburg, Würzburg, Germany
European Academy of Neurology, Vienna, Austria
Department of Neurology, Medical University of Vienna, Vienna, Austria
Comprehensive Center for Clinical Neurosciences, Medical University of Vienna, Vienna, Austria
Neurology Department, Inselspital, University Hospital, University of Bern, Bern, Switzerland
Department of Neurology, 4Brain, Institute for Neuroscience, Reference Center for Refractory Epilepsy, Ghent University Hospital, Ghent, Belgium
Centre for Narcolepsy and Hypersomnolence Disorders, ship for Narcolepsy and Hypersomnolence Research, Department of Medicine, Witten/Herdecke University, Witten, Germany
Centre for Biomedical Education and Research, Witten/Herdecke University, Witten, Germany
Department of Pharmacology and Therapeutics, University of Liverpool, Liverpool, United Kingdom
Department of Psychiatry, Neurology and Neurological Rehabilitation, Grenoble Alpes University Hospital, Grenoble, France
Brain and Mind Research, Central European Institute of Technology, Masaryk University, Brno, Czech Republic
First Department of Neurology, St. Annes University Hospital and Faculty of Medicine, Masaryk University, Brno, Czech Republic
ERN-NMD Centre for Neuromuscular Disorders of Messina, Department of Clinical and Experimental Medicine, University of Messina, Messina, Italy
University Vita-Salute San Raffaele, Milan, Italy
Experimental Neurophysiology Unit, Institute of Experimental Neurology—INSPE, IRCCS San Raffaele Scientific Institute, Milan, Italy
Neurology
Complex Operative Unit of Neurology
Department of Neurology
Department of Neurology
Neurology Department
Paris Brain Institute
Cognitive Neurology Unit
Epilepsy Center
Scientific and Educational Center for Neurology and Applied Neuroscience
Odense University Hospital
Division of Neurology
Medical Directorate
European Academy of Neurology
Department of Neurology
Comprehensive Center for Clinical Neurosciences
Neurology Department
Department of Neurology
Centre for Narcolepsy and Hypersomnolence Disorders
Centre for Biomedical Education and Research
Department of Pharmacology and Therapeutics
Department of Psychiatry
Brain and Mind Research
First Department of Neurology
ERN-NMD Centre for Neuromuscular Disorders of Messina
University Vita-Salute San Raffaele
Experimental Neurophysiology Unit
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