The Chronic Angioedema Registry (CARE): Rationale, Methods and Implementation

Buttgereit T. Aulenbacher F. Gutsche A. Kolkhir P. Weller K. Vera Ayala C. Magerl M. Farkas H. Grumach A.S. Aygören-Pürsün E. Bara N. Ben-Shoshan M. Bernstein J. Betschel S. Bouillet L. Caballero T. Cancian M. Castaldo A.J. Cimbollek S. Cohn D.M. Craig T. Fomina D. Gelincik A. Grivcheva-Panovska V. Jindal A. Katelaris C. Kessel A. Kinaciyan T. Longhurst H.J. Martinez-Saguer I. Riedl M. Schöffl C. Staubach P. Zanichelli A. Zhi Y. Balle Boysen H. Fok J.S. Li P.H. Hakl R. Hide M. Peter J. Maurer M.
September 2024 John Wiley and Sons Inc

Clinical and Experimental Allergy
2024 #54 Issue 9 712 - 716 pp.

ACARE , angioedema , CARE , chronic , registry

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Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité – Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany
Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany
Hungarian Angioedema Center of Reference and Excellence (ACARE), Department of Internal Medicine and Haematology, Semmelweis University, Budapest, Hungary
Angioedema Center of Reference and Excellence (ACARE), Clinical Immunology, University Center Faculdade de Medicina Do ABC, Santo André, Brazil
Department of Pediatrics, University Hospital Frankfurt, Goethe University Frankfurt, Frankfurt, Germany
Romanian Hereditary Angioedema Expertise Centre, Centru Clinic Mediquest, Sangeorgiu de Mures, Romania
Division of Allergy, Immunology and Dermatology, Department of Pediatrics, Montreal Childrens Hospital, McGill University, Montreal, QC, Canada
Department of Internal Medicine, Division of Rheumatology, Allergy and Immunology, Angioedema Center of Reference and Excellence (ACARE), University of Cincinnati College of Medicine, Cincinnati, OH, United States
Department of Medicine, St. Michaels Hospital, University of Toronto, Toronto, ON, Canada
Angioedema Center of Reference and Excellence (ACARE), National Reference Center of Angioedema CREAK, Grenoble, France
Internal Medicine Department, Grenoble University Hospital, Grenoble, France
Angioedema Center of Reference and Excellence (ACARE), Hereditary Angioedema National Reference Center (CSUR), Department of Allergy, La Paz University Hospital, Hospital La Paz Institute for Health Research (IdiPAZ – Group 44), Biomedical Research Network on Rare Diseases (CIBERER U754), Madrid, Spain
Angioedema Center of Reference and Excellence (ACARE), Departmental Unit of Allergology, University Hospital of Padua, Padua, Italy
HAE International – HAEi, Fairfax, VA, United States
Hospital U. Virgen del Rocío, Sevilla, Spain
Angioedema Center of Reference and Excellence (ACARE), Amsterdam UMC, Department of Vascular Medicine, Amsterdam Cardiovascular Sciences, University of Amsterdam, Amsterdam, Netherlands
Angioedema Center of Reference and Excellence (ACARE), Department of Medicine, Pediatrics and Biomedical Sciences, Pennsylvania State University, Hershey, PA, United States
International Hospital, Times City, Hanoi, Viet Nam
Angioedema Center of Reference and Excellence (ACARE), Moscow Clinical and Research Center of Allergology and Immunology, Clinical Hospital No 52, Moscow Healthcare Department, Moscow, Russian Federation
Department of Clinical Immunology and Allergology, I. M. Sechenov First Moscow State Medical University (Sechenov University), Moscow, Russian Federation
Department of Pulmonology, Astana Medical University, Astana, Kazakhstan
Angioedema Center of Reference and Excellence (ACARE), Division of Immunology and Allergic Diseases, Department of Internal Medicine, Istanbul Faculty of Medicine, Istanbul University, Istanbul, Turkey
Angioedema Center of Reference and Excellence (ACARE), University Clinic of Dermatology, Ss Cyril and Methodius University, Skopje, North Macedonia
Angioedema Center of Reference and Excellence (ACARE), Allergy Immunology Unit, Department of Pediatrics, Advanced Pediatrics Centre, Post-Graduate Institute of Medical Education and Research (PGIMER), Chandigarh, India
Angioedema Center of Reference and Excellence (ACARE), Western Sydney University and Campbelltown Hospital, Campbelltown, NSW, Australia
Angioedema Center of Reference and Excellence (ACARE), Division of Allergy and Clinical Immunology, Bnai Zion Medical Center and the Bruce and Ruth Rappaport Faculty of Medicine, Technion, Haifa, Israel
Angioedema Center of Reference and Excellence (ACARE), Department of Dermatology, Medical University of Vienna, Vienna, Austria
Department of Medicine, University of Auckland, Auckland, New Zealand
Department of Immunology, Auckland City Hospital, Auckland, New Zealand
Pediatrics, Haemophilia Centre Rhine Main (HZRM), Moerfelden-Walldorf, Germany
Division of Rheumatology, Allergy, and Immunology, University of California San Diego, La Jolla, CA, United States
Department of Dermatology, Medical University of Graz, Graz, Austria
Angioedema Center of Reference and Excellence (ACARE), Department of Dermatology, University Medical Center Mainz, Mainz, Germany
Departamento di Scienze Biomediche per la Salute, Università Degli Studi di Milano, Milan, Italy
Operative Unit of Medicine, IRCCS Policlinico San Donato, San Donato Milanese, Milan, Italy
Department of Allergy, Peking Union Medical College Hospital, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing, China
Angioedema Center of Reference and Excellence (ACARE), Department of Respiratory Medicine and General Medicine, Box Hill Hospital, Eastern Health, Melbourne, VIC, Australia
Monash Lung, Sleep and Allergy/Immunology, Monash Medical Centre, Melbourne, VIC, Australia
Eastern Health Clinical School, Monash University, Melbourne, VIC, Australia
Angioedema Center of Reference and Excellence (ACARE), Division of Rheumatology and Clinical Immunology, Department of Medicine, Queen Mary Hospital, University of Hong Kong, Hong Kong
Department of Clinical Immunology and Allergology, St. Annes University Hospital in Brno and Faculty of Medicine, Masaryk University, Brno, Czech Republic
Angioedema Center of Reference and Excellence (ACARE), Department of Dermatology, Graduate School of Biomedical & Health Sciences, Hiroshima University, Hiroshima, Japan
Department of Dermatology, Hiroshima City Hiroshima Citizens Hospital, Hiroshima, Japan
Angioedema Center of Reference and Excellence (ACARE), Division of Allergy and Clinical Immunology, Department of Medicine, University of Cape Town, Cape Town, South Africa
Allergy and Immunology Unit, University of Cape Town Lung Institute, Cape Town, South Africa

Angioedema Center of Reference and Excellence (ACARE)
Fraunhofer Institute for Translational Medicine and Pharmacology ITMP
Hungarian Angioedema Center of Reference and Excellence (ACARE)
Angioedema Center of Reference and Excellence (ACARE)
Department of Pediatrics
Romanian Hereditary Angioedema Expertise Centre
Division of Allergy
Department of Internal Medicine
Department of Medicine
Angioedema Center of Reference and Excellence (ACARE)
Internal Medicine Department
Angioedema Center of Reference and Excellence (ACARE)
Angioedema Center of Reference and Excellence (ACARE)
HAE International – HAEi
Hospital U. Virgen del Rocío
Angioedema Center of Reference and Excellence (ACARE)
Angioedema Center of Reference and Excellence (ACARE)
International Hospital
Angioedema Center of Reference and Excellence (ACARE)
Department of Clinical Immunology and Allergology
Department of Pulmonology
Angioedema Center of Reference and Excellence (ACARE)
Angioedema Center of Reference and Excellence (ACARE)
Angioedema Center of Reference and Excellence (ACARE)
Angioedema Center of Reference and Excellence (ACARE)
Angioedema Center of Reference and Excellence (ACARE)
Angioedema Center of Reference and Excellence (ACARE)
Department of Medicine
Department of Immunology
Pediatrics
Division of Rheumatology
Department of Dermatology
Angioedema Center of Reference and Excellence (ACARE)
Departamento di Scienze Biomediche per la Salute
Operative Unit of Medicine
Department of Allergy
Angioedema Center of Reference and Excellence (ACARE)
Monash Lung
Eastern Health Clinical School
Angioedema Center of Reference and Excellence (ACARE)
Department of Clinical Immunology and Allergology
Angioedema Center of Reference and Excellence (ACARE)
Department of Dermatology
Angioedema Center of Reference and Excellence (ACARE)
Allergy and Immunology Unit

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